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It was the seizures that tipped Penny off that something wasn’t right with Harper after she and her husband Dustin brought her home from the hospital as a cannabis oil cure skin cancer newborn. Several months later having tried a battery of epilepsy medications and still without a diagnosis Penny and Dustin flew to Boston with Harper to see an expert in infant seizures. It was there they first heard of CDKL5. This is the point where life changed significantly? Penny said because now we had ommp rick simpson oil this diagnosis. You know this abnormality in our family that we cannot fix.