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. The family had an interim plan. Elinor Carucci Settling into London Evelyn was almost afraid to believe how well the treatment seemed to be working.
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He said he’ll be back next year trying again. State Rep. John Forbes an Urbandale Democrat who works as a pharmacist was a sponsor of the bill. He said more than 20 states already have such laws and he sees no threat
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A typical prognosis: If we can control the seizures with the first three meds he’ll probably never have another one. If we can’t the future is less certain. Beatrice developed absence epilepsy when she was older in 2010.
We’d been told it was 10:1 CBD to THC. It was really 3:1. The tincture that seemed to work for Sam in June hadn’t been tested so we had no idea how to assess the temporary drop in seizures. My first reaction to treating Sam Are There Thc Receptors In Your Brain with cannabis was that it sounded crazy. I associated pot with partying not treating my son’s serious illness. The experience with the unscientific methods of the collective and with the false labeling of products in dispensaries was infuriating and demoralizing.
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He was on his school’s indoor soccer team. And he runs a nine-minute mile. Sure he’s about 5:15 off world-record pace.
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By the time he reached London Sam had been on a big dose of the corticosteroid prednisone off and on for a year. It made him gain 30 pounds. It made his face look like it had been pumped full of air?a side effect known as moon face.? And it weakened his immune system. He was starting to get head and chest colds every month.
Back in the UCSF conference room we finalized our plans: Evelyn would take Sam to London where he would try pure CBD pills made especially for him. He wouldn’t be the first person to try pure pharmaceutical CBD for epilepsy. Four small studies between 1978 and 1990 had tried it on a total of about 40 people. Surely others had tried homemade concoctions.
That meant two more rounds of brain scans blood tests and doctors’ appointments. We were confident the medicine wouldn’t kill Sam or hurt him irreversibly but the prospect still made us nervous. The pills contained a pharmaceutical derivative of cannabis. People have been smoking cannabis medicinally for thousands of years. Deaths are rare.
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